Tuesday, January 27, 2009
Finally! Pictures from potluck.
Go to thechoice.shutterfly.com to see pictures from the potluck (and from home)!
Sunday, January 25, 2009
Sunday Funday!!!!
Wow, Sunday was a lot of fun! First off, in church, I got to play two of my favorite songs on the piano: Shine Jesus Shine and Lord, You Have Come. Next, we had a potluck at our school!!! It was so awesome. The games were a lot of fun, especially when the adults joined in. I'll have a big slideshow of pictures on here too, once I figure out how! (Mrs. P., any tips? I'll have to ask you at school!)
PS: We won both basketball games on Saturday against St. Joe's, 34-28 or something and 38-14!
PS: We won both basketball games on Saturday against St. Joe's, 34-28 or something and 38-14!
Tuesday, January 20, 2009
January Cleveland Update
This is a little late, it's been a very busy month, Jeremy had a check-up at Cleveland on the 6th of January. Overall it is was a pretty good appointment. It looks like the pancreatitis is related to his UC. They don't know for sure why this happened to him, (the genetic testing was negative) it may have been caused by some sort of infection. They do know something caused his immune system to turn on himself. Jeremy had pain off and on most of the day on the 5th. This is the first pain he has had since the end of September. When we discussed this with the dietician, it appears this was probably caused by the one slice of an orange I let him eat on the 4th. We were pretty upset that just one slice of an orange could cause so many problems for him. The good news was that his doctor felt he was doing well and he does not need to return to the clinic for 3 months. They allowed us to liberalize the fat in his diet but he needs to continue with a low fiber diet. Jeremy's been pretty happy to eat real meatloaf and real sloppy joes this month. It was great to watch his reaction when the dietician said he should be eating red meat. We were really pleased with Cleveland Clinic again and both of us feel so much more confident that they know what they are doing and they really are doing everything they can to help him. The nurses have been wonderful at helping Jeremy feel comfortable and keeping us well informed. We were very blessed to have clear roads for the drive to Cleveland and back. Bert went with us this time, when he wasn't driving he was quizzing Jeremy on spelling bee words. It made the trip much easier for me.
Jeremy is still feeling good, he's playing basketball and still driving his brother crazy. He's following his diet guidelines closely because he doesn't want to be in pain anymore. We're very thankful for everyone's support during this past year and we're very hopeful that 2009 will be a much healthier year for Jeremy. (Yes, before he writes this for me, his mother wrote this entry)
Jeremy is still feeling good, he's playing basketball and still driving his brother crazy. He's following his diet guidelines closely because he doesn't want to be in pain anymore. We're very thankful for everyone's support during this past year and we're very hopeful that 2009 will be a much healthier year for Jeremy. (Yes, before he writes this for me, his mother wrote this entry)
Tuesday, January 13, 2009
Nother Speeling Be!!!!!!
Gess wat peeples, I was in a noter Speeling Be!!!And gess wat ellse: i wan!!!!!!!! I got a trofy and twety buks fur wining. Next on is in Standihs, MI, so bee their!!!!
PS: my buther got furth in the sam speeling be.
PS: my buther got furth in the sam speeling be.
Saturday, January 3, 2009
Monday, December 29, 2008
Only a TEENY bit late (check the date)
Merry Christmas!!!!!!!! Finally, its here!!!!!! Mine totally rocked, especially with some totally rocking gifts and a totally rocking Christmas Eve as i went around playing piano for our church, my mom's work, and another church. Anyways, i want to say thank you to everyone for the continued prayers and support you've given me this year. Have a good next year!!!!!!!!!
PS: Only ONE MORE DAY for the poll! So far, were going to change the dress code!!! (at least in the poll) Its closing tomorrow, so hurry and get your vote in TODAY!!!!!
PPS: The poll is now closed. Final tally: yes (7) no (4)
PS: Only ONE MORE DAY for the poll! So far, were going to change the dress code!!! (at least in the poll) Its closing tomorrow, so hurry and get your vote in TODAY!!!!!
PPS: The poll is now closed. Final tally: yes (7) no (4)
Tuesday, December 9, 2008
More labs to update
Hi everyone,
Today we were very happy to receive a call from Brenda at Cleveland with the results of his Pancreatitis related labs. These were the labs that were drawn on October 30th. We knew they would take 6 weeks to get the results and we have been anxiously watching the calendar the last few days. Brenda said the labs for the genetic testing for the pancreatitis were all negative. I know this means he does not have the Cystic Fibrosis gene and the hereditary pancreatitis was also ruled out. I wasn't really sure what the third lab result was related to but it was some form of genetic predisposition for pancreatitis, which was also ruled out. So we are very thankful for such good news again! He'll be going to Cleveland the first week of January to meet with Dr. Kay and determine what we do next. We continue to be very impressed with the staff from Cleveland Clinic and their helpfulness as we try and understand all of this. Thank you for all of your continued support and prayers!
PS: My mom wrote this post!!!!!!!!!!!!!
Today we were very happy to receive a call from Brenda at Cleveland with the results of his Pancreatitis related labs. These were the labs that were drawn on October 30th. We knew they would take 6 weeks to get the results and we have been anxiously watching the calendar the last few days. Brenda said the labs for the genetic testing for the pancreatitis were all negative. I know this means he does not have the Cystic Fibrosis gene and the hereditary pancreatitis was also ruled out. I wasn't really sure what the third lab result was related to but it was some form of genetic predisposition for pancreatitis, which was also ruled out. So we are very thankful for such good news again! He'll be going to Cleveland the first week of January to meet with Dr. Kay and determine what we do next. We continue to be very impressed with the staff from Cleveland Clinic and their helpfulness as we try and understand all of this. Thank you for all of your continued support and prayers!
PS: My mom wrote this post!!!!!!!!!!!!!
Sunday, December 7, 2008
Basketball Update
Finally, basketball season has started!!!!!!! WOO!!!!!
Our team has won both of it's games, 57-33 and 47-19. We're off to a completely phenomenalalala start. WOO YEAHHHHHH!!!!!!!
Our team has won both of it's games, 57-33 and 47-19. We're off to a completely phenomenalalala start. WOO YEAHHHHHH!!!!!!!
Friday, November 21, 2008
News from Cleveland
Hi everyone,
We're back from the 2days at Cleveland. We were very fortunate that the weather and roads were clear. There was alot packed in to the 2 days so I'll try to summarize it here:
First was the consult with Dr. Kay. Mainly no news from this appointment because many of the labs have not come back yet. Most of the questions I asked her she had to defer until after she did the tests or received the lab reports. At least we knew that she had been reviewing Jeremy's records and she was trying to get to the bottom of what was going on with him. The place was really packed. It is a very busy practice but they were still able to see us pretty much on schedule.
Next was the bone density test. The preliminary report did not look the best but Dr. Kay said to not worry about it until she reviewed the final report. That was reassuring. It will help to get him off the Prednisone as soon as possible. For now we're just pushing as much calcium as possible for him.
Then he had the MRI MR/CP. He had been with nothing to eat for 6 hours prior to this test and I have to admit he was a real trooper about this. The test showed that he does not have the pancreatic divisum. Unfortunately we had hoped all summer he did have this as this can be surgically repaired. The pancreatitis mystery remains unsolved.
Then we stayed at the home of Janice's boss's sister who lives about 5 minutes from the hospital. Jeremy played their Wii while drinking his colonoscopy prep. This made the whole situation much more bearable for him. The home was beautiful and Suzy and Greg were so kind and easy to talk to. Jeremy called Suzy Aunt Suzy at one point which came natural to him because he does have an Aunt Suzy and Uncle Greg. He did beat them on Mario Kart Wii often but we should note Greg did beat him once! Only because he fell off the ledge twice, though. We were very blessed to be able to spend the evening with such wonderful people and knowing that we were also so close to the hospital.
The next day we arrived at the hospital at 7am and they were starting his procedures by 7:40am. The nurse did give him some grief about being from Michigan, as the big Michigan Vs Ohio State game is this Saturday. She was reassured when we told her we were not Michigan fans. They completed both scopes within an hour and Jeremy was in recovery. Dr. Kay looked happy when she met with us after the procedures. The inflamation was limited to a small spot, no skip spots, esophagus and small intestine looked good. She decided to reduce the Prednisone (steroids) more and told us to call next week to reduce it some more. She wants to wait for the biopsies before she could say anything for sure about the results. We got the impression that she was very positive about what she saw but it's hard to know for sure. So for now, we're more hopeful than we were on Wednedsay.
We really want to let everyone know that our experience at Cleveland Clinic was exceptional this week. The anesthesiologists were able to sedate Jeremy without using a tube that hurt his throat so when he woke up he was not hoarse and not in pain. They ran an IV of pain medication and anti-nausea meds while they had him under for the procedure. When he woke up he was able to start eating cookies, drinking pop and did not feel nauseous at all. This made his recovery much easier than the last time. All of the staff at Cleveland Clinic were very helpful and went out of their way to try and help Jeremy feel more at ease. His recovery was much quicker this time then when he had the procedures done at a different setting last month. We are very thankful for how much better these procedures were for him.
Jeremy is still on a low fat, low fiber diet. Turkey, mashed potatoes and green beans fortunately fall into these categories. We found a low fat pumpkin pie recipe we'll be trying on Thanksgiving.
We are very thankful to God for the many blessings from this visit, the new friends, the start of a good report, very competent doctors, nurses and anesthesiologists, and clear roads. We're very thankful that there was no additional bad news in Cleveland and that there is possibly some good news. We're also very thankful for all the prayers and support from so many great friends.
So if we don't see you this Thanksgiving, we wish you a very special Thanksgiving and we hope that you know that when we are remembering all of our blessings on Thursday, we'll definitely be remembering you.
And before he comes behind me and types it in....yes, Jeremy's mother did type this blog.
We're back from the 2days at Cleveland. We were very fortunate that the weather and roads were clear. There was alot packed in to the 2 days so I'll try to summarize it here:
First was the consult with Dr. Kay. Mainly no news from this appointment because many of the labs have not come back yet. Most of the questions I asked her she had to defer until after she did the tests or received the lab reports. At least we knew that she had been reviewing Jeremy's records and she was trying to get to the bottom of what was going on with him. The place was really packed. It is a very busy practice but they were still able to see us pretty much on schedule.
Next was the bone density test. The preliminary report did not look the best but Dr. Kay said to not worry about it until she reviewed the final report. That was reassuring. It will help to get him off the Prednisone as soon as possible. For now we're just pushing as much calcium as possible for him.
Then he had the MRI MR/CP. He had been with nothing to eat for 6 hours prior to this test and I have to admit he was a real trooper about this. The test showed that he does not have the pancreatic divisum. Unfortunately we had hoped all summer he did have this as this can be surgically repaired. The pancreatitis mystery remains unsolved.
Then we stayed at the home of Janice's boss's sister who lives about 5 minutes from the hospital. Jeremy played their Wii while drinking his colonoscopy prep. This made the whole situation much more bearable for him. The home was beautiful and Suzy and Greg were so kind and easy to talk to. Jeremy called Suzy Aunt Suzy at one point which came natural to him because he does have an Aunt Suzy and Uncle Greg. He did beat them on Mario Kart Wii often but we should note Greg did beat him once! Only because he fell off the ledge twice, though. We were very blessed to be able to spend the evening with such wonderful people and knowing that we were also so close to the hospital.
The next day we arrived at the hospital at 7am and they were starting his procedures by 7:40am. The nurse did give him some grief about being from Michigan, as the big Michigan Vs Ohio State game is this Saturday. She was reassured when we told her we were not Michigan fans. They completed both scopes within an hour and Jeremy was in recovery. Dr. Kay looked happy when she met with us after the procedures. The inflamation was limited to a small spot, no skip spots, esophagus and small intestine looked good. She decided to reduce the Prednisone (steroids) more and told us to call next week to reduce it some more. She wants to wait for the biopsies before she could say anything for sure about the results. We got the impression that she was very positive about what she saw but it's hard to know for sure. So for now, we're more hopeful than we were on Wednedsay.
We really want to let everyone know that our experience at Cleveland Clinic was exceptional this week. The anesthesiologists were able to sedate Jeremy without using a tube that hurt his throat so when he woke up he was not hoarse and not in pain. They ran an IV of pain medication and anti-nausea meds while they had him under for the procedure. When he woke up he was able to start eating cookies, drinking pop and did not feel nauseous at all. This made his recovery much easier than the last time. All of the staff at Cleveland Clinic were very helpful and went out of their way to try and help Jeremy feel more at ease. His recovery was much quicker this time then when he had the procedures done at a different setting last month. We are very thankful for how much better these procedures were for him.
Jeremy is still on a low fat, low fiber diet. Turkey, mashed potatoes and green beans fortunately fall into these categories. We found a low fat pumpkin pie recipe we'll be trying on Thanksgiving.
We are very thankful to God for the many blessings from this visit, the new friends, the start of a good report, very competent doctors, nurses and anesthesiologists, and clear roads. We're very thankful that there was no additional bad news in Cleveland and that there is possibly some good news. We're also very thankful for all the prayers and support from so many great friends.
So if we don't see you this Thanksgiving, we wish you a very special Thanksgiving and we hope that you know that when we are remembering all of our blessings on Thursday, we'll definitely be remembering you.
And before he comes behind me and types it in....yes, Jeremy's mother did type this blog.
Wednesday, November 12, 2008
Labs update
Just to clarify, Jeremy's totally normal labs are now Amylase 44, Lypase 18. The Lypase was the one that was 2248 in August so we are very thankful that he is now within normal limits. His bone age was 11 years 6 months which is actually 9 months younger than his actual age, which is wonderful news. The IBD serology was non conclusive for IBD, although his doctor did warn us that this test can show false negatives and false positives. They are starting to wean him off the Prednisone, which is a very good thing. The Hemocoult slide was negative for blood. The pancreatitis related labs have not come back yet so hopefully they will be back by the time we go to Cleveland next week.
And before Jeremy writes it, let me say, his mother wrote this blog.
And before Jeremy writes it, let me say, his mother wrote this blog.
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