This is a little late, it's been a very busy month, Jeremy had a check-up at Cleveland on the 6th of January. Overall it is was a pretty good appointment. It looks like the pancreatitis is related to his UC. They don't know for sure why this happened to him, (the genetic testing was negative) it may have been caused by some sort of infection. They do know something caused his immune system to turn on himself. Jeremy had pain off and on most of the day on the 5th. This is the first pain he has had since the end of September. When we discussed this with the dietician, it appears this was probably caused by the one slice of an orange I let him eat on the 4th. We were pretty upset that just one slice of an orange could cause so many problems for him. The good news was that his doctor felt he was doing well and he does not need to return to the clinic for 3 months. They allowed us to liberalize the fat in his diet but he needs to continue with a low fiber diet. Jeremy's been pretty happy to eat real meatloaf and real sloppy joes this month. It was great to watch his reaction when the dietician said he should be eating red meat. We were really pleased with Cleveland Clinic again and both of us feel so much more confident that they know what they are doing and they really are doing everything they can to help him. The nurses have been wonderful at helping Jeremy feel comfortable and keeping us well informed. We were very blessed to have clear roads for the drive to Cleveland and back. Bert went with us this time, when he wasn't driving he was quizzing Jeremy on spelling bee words. It made the trip much easier for me.
Jeremy is still feeling good, he's playing basketball and still driving his brother crazy. He's following his diet guidelines closely because he doesn't want to be in pain anymore. We're very thankful for everyone's support during this past year and we're very hopeful that 2009 will be a much healthier year for Jeremy. (Yes, before he writes this for me, his mother wrote this entry)
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5 comments:
Very glad that the appointment went well. How sad that a single orange slice gave him such trouble though. Bummer. Overall though it seems like things are going better and we definitely hope that 2009 is kinder to all of you.
A Single Slice... That sounds like the book "A Single Shard." Oh well. Oranges were always hard to peel anyways.
I can't imagine just ONE slice would cause that much pain - how awful. May the year 2009 be a kinder, gentler year for you.
Hi Jeremy!
I finally got off the couch to visit your blog. It's very professionally done.(not that I've seen a lot of blogs, but I'm impressed) Congratulations on the spelling bee and I hope your basketball games are going well. I would come to one, but crutches really are cumbersome.
I'm happy that you are still feeling swo well! And you can eat red meat!!! I doubt the cows are celebrating that! I miss you and Ryan. Don't grow up too fast while I recover on the couch. :(
Love,
Janice
Aunt Janice!!!!! HI!!!!!! I hope your feeling better now. I haven't seen you in a while. Hope to see you soon and thanks for the compliments.
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